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Congress Targets AI Health Data Sales with New Privacy Bill

9to5Mac •
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Senator Elizabeth Warren and Representative Mary Gay Scanlon plan to introduce legislation that would ban AI companies from selling health data collected through chatbot conversations. The proposed Health and Location Data Protection Act expansion specifically targets sensitive medical information users share with AI systems, preventing its sale to data brokers.

Major AI companies have been actively encouraging health data sharing. In January, Elon Musk urged users to upload medical records to Grok, while OpenAI launched ChatGPT Health for medical record uploads. Anthropic responded with Claude for Healthcare, marketing it as a 'HIPAA-ready' solution for patients and providers.

These developments highlight growing concerns about how AI firms handle confidential health information. Most chatbot terms permit conversation data to be used for training and potentially sold, creating risks for users seeking medical guidance online. The article notes that Apple's Siri maintains stricter privacy standards, with both its ChatGPT integration and Google Gemini models explicitly prohibited from collecting user data.

While piecemeal legislation addresses immediate privacy gaps, the piece argues comprehensive federal privacy law similar to the EU's GDPR remains necessary. The proposed bill represents overdue protection for Americans sharing sensitive health details with AI systems, though technology will likely continue outpacing regulatory frameworks.