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Pittsburgh Runners Don Underwear for Neurofibromatosis Awareness

Yahoo Finance •
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Cupid’s Undie Run returns for its 14th edition, with over 300 participants braving chilly temperatures to sprint a 1-mile route through Pittsburgh’s North Shore. The annual event, held this Saturday, combines quirky fundraising with a serious cause: raising awareness for neurofibromatosis, a genetic disorder causing non-cancerous tumors. Organizers aim to hit a $110,000 fundraising target, with donations accepted until month’s end via their campaign link. Race director Brooke Bissell emphasized the event’s purpose: “We want people to realize this is not about silliness—it’s about visibility. Those with tumors can’t always conceal them, and our underwear run mirrors that reality.”

The race’s unconventional format—runners clad only in underwear—serves as a metaphor for the condition’s impact. Neurofibromatosis affects 1 in 3,000 people globally, yet remains underdiagnosed. By turning heads and sparking conversations, the event hopes to drive early screenings and research funding. Last year’s edition raised $95,000, falling short of its goal but exceeding expectations given the condition’s obscurity in public discourse.

Participants included local athletes, families, and corporate teams, with many sharing personal stories on social media. One runner, a Pittsburgh teacher, revealed her daughter’s diagnosis at age six, highlighting how the event empowers affected families. Medical experts note that early detection improves outcomes, but stigma often delays diagnosis. The run’s visibility could shift that dynamic, Bissell said, “by making neurofibromatosis impossible to ignore.”

With $110,000 as the official target, organizers stress that every dollar supports patient advocacy groups and genetic research initiatives. “This isn’t just a fundraiser—it’s a movement,” Bissell added. The event’s success hinges on viral social media engagement, with hashtags like #UndieRun2024 trending locally. For now, the race stands as both a celebration of resilience and a call to action for a condition that “hides in plain sight,” as Bissell put it.